The Charles Press, Publishers

Realities in Coping with Progressive Neuromuscular Diseases

Edited by Leon Charash, MD, et al.

All those who provide care for victims of amyotrophic lateral sclerosis (ALS) and Duchenne muscular dystrophy (DMD) are deeply aware of the seemingly insurmountable problems involved in coping with progressive neuromuscular diseases. How can the care team assist patients and their families with this grievous experience?

Realities in Coping with Progressive Neuromuscular Diseases focuses on this fundamental question by bringing together the work of 51 eminent authorities on neurology, nursing, psychology, social work, psychiatry, respiratory therapy, pastoral care and other related disciplines. Rarely has such expertise been assembled in a single source.

Written for professionals, this book explains how coping mechanisms can be facilitated at each stage of the disease, beginning with the initial diagnosis and extending through terminal care. Among the many practical topics covered are the management of adolescents with DMD, home care for paralyzed respirator patients, the organization and function of family support groups, genetic counseling, the role of faith and the education of boys with DMD, to name a few.

The facts and perspectives presented here should benefit all members of the caring professions not only in aiding and counseling their clients, but also in coping with their own reactions to the tragic circumstances of these diseases.

248 pages Hardcover Edition Only ISBN: 0-914783-20-3  LIST PRICE: $34.95